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Life and Pain

Apr. 5th, 2012 | 03:32 pm
music: "Flapper Girl" - The Lumineers
posted by: tunes84 in untreated_pain

I've recently become more open about the pain I'm in, and I really wish to share it with others in similar situations. I've made a post on my own journal, and I do hope it will help in some way for even just one other person who deals with the day-to-day grind of chronic pain. And if there is anything I can do to help, please feel free to contact me. Even if it's just an ear to listen, I'm sort of in limbo when it comes to my life. Simply existing instead of living. I can offer any kind of emotional support and ideas if someone needs.

My post about pain

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Sep. 3rd, 2010 | 04:58 am
posted by: glitterophelia in untreated_pain

Still suffering from untreated pain. As I have told you guys before the doctors thought it was my left kidney and removed it four years ago, it turns out that it's actually fibromyalgia and arthritis in my back. The only doctor my insurance will cover here refuses to treat pain conditions so I'm forced to save up money to go out of town to get treated an hour away. I did obtain a medical marijuana card last year and that helped immensely, but that too has run out. So now mostly I utilize kratom for the pain when I can afford to, I did try physical therapy which didn't help much, and am trying to learn relaxation techniques and am even going as far as to change my diet to low fat vegan as I have heard that this can also help the pain. What is everyone else doing? is it working for you?

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May. 7th, 2008 | 09:39 pm
posted by: l_is_for_lupus in untreated_pain

L is for Lupus, an online directory of reviews and recommendations for patients by patients, has officially gone online today.

Bear in mind, this is just the beginning. This site will not be limited to just lupus-related material. I've begun to include Fibromyalgia books and websites to review, and I hope to include other auto-immune diseases as well.

I'm very excited to be ahead of schedule! Please help get this started and write some reviews! Your opinion will help others research their auto-immune disease. I hope to see you there!

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L is for Lupus - reviews+recommendations

Apr. 22nd, 2008 | 10:00 am
posted by: l_is_for_lupus in untreated_pain

Beginning May 15th, 2008, L is for Lupus will be an online directory of reviews and recommendations for lupus patients by lupus patients. An online community/bulletin board is also in the works.

L is for Lupus is currently seeking submissions for books and other items to review. We're not ready to accept actual reviews just yet--that will begin on May 15th. If there's something you would like to see reviewed on L is for Lupus, please let me know by posting below or send me an e-mail!

L is for Lupus on MySpace
L is for Lupus on Twitter
L is for Lupus on Facebook
L is for Lupus on LiveJournal

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Apr. 20th, 2008 | 12:08 pm
posted by: glitterophelia in untreated_pain

someone just sent me this link, figured some of you might be interested:


I haven't tried this yet, but I signed up for the sample.

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Apr. 16th, 2008 | 02:04 am
posted by: kenske in untreated_pain

Hello there! My name is David, and I live in Fairbanks, AK, and next month I turn the ripe age of 20.

That being said, I'll introduce why I'm joining this community. I've been into swing and ballroom dance since my freshmen year of high school, but didn't get serious about it until my junior year (when I started competing). In the spring of 2005, I started getting pain in the left side of my back (ranging from just the middle sometimes, to up and down the entire side). Presumably this was from performing a lift incorrectly multiple times.

The pain got worse from stress, tiredness, etc., but it still hasn't gone away three years later. A year ago I realized that I couldn'y sit comfortably on the floor because of discomfort in my left hip. Then, half a year ago, after taking a ballet class, I woke up the next morning with my left knee in pain, so bad that I had trouble walking for two weeks (one of the reasons I dropped out of college that semester).

Lastly, I slipped on the ice in December and pulled a muscle in my left shoulder, and that still hasn't healed (I can't sleep with my left arm under my pillow, and I can't hang from a bar, like at a playground, on my left arm).

So, I've had pain in my left side of my back, left hip, left knee, and left shoulder. I've been multiple doctors, three orthopedics, and a chiropractor. The doctors have told me that a)it'll heal on it's own, b)it's just inflammation, c)it's just anxiety/stress, and d)it'll go away if I stretch (this was all within the same hospital).

The strongest medication I've been prescribed is naproxen. I have no idea for the cause in my hip, shoulder, or back, but after an X-ray, it turns out that my knee is being pulled inward by my quad (I was told this and then sent away, saying it'd heal on it's own).

Because of the knee pain, I have stopped doing ballet, jazz, and modern (due to the heavy knee motions), and since I'm out of high school, there is no place for me to do ballroom dance in Fairbanks, so I've stopped dancing. Also, I don't know if I could do ballroom (Dancesport, olympic training) for ten to twenty hours a week (like what I want to do).

This has lead to depression, and I think that all these physical ailments are related to my chronic fatigue (I need 16 hours of sleep to feel refreshed, and that's if I'm lucky...). I wouldn't be surprised if my depression is just the result of my body seemingly falling apart on one side!

Anyway, my only solace is my chiropractor (I've walked in with hip pain, and walked out with none). I've been trying to find a good deep massage therapist (someone who'll completely ravage my back to get all the knots), but to no avail. I'm starting to look into diabetes, chronic fatigue, auto-immune diseases, and the like so I can find a reason why I have pain in so many places, why it isn't healing, why I'm depressed, and why I'm so exhausted all the time.

But, this entry is already long enough, but thanks for reading! If you have any input, suggestions, tips, or want to talk about dance or anything else, just leave a comment!

(PS- my insurance is the Native Health care because I'm part Inupiaq. So, I can only go to there hospital, which is understaffed, and the staff that is there is underpaid. I received Medicaid for three weeks, but I was then employed full time at minimum wage and lost it.)

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Apr. 15th, 2008 | 03:32 pm
posted by: glitterophelia in untreated_pain

Anyone here use Kratom or Phenocane for pain?

I haven't used Phenocane in ages due to cost. I just got some Kratom off a seller on ebay for a reasonable price, and am using it today for the first time in a year. It's not a prescription med, but it helps. I was able to clean the house up a bit without the usual pain that I normally have, and even called my dad (I felt much calmer for some reason too, I think it was another effect of it).

I can't afford to get this much but I love it when I can. Plus, if it weren't for kratom I would have had a HORRIBLE time quitting vicodin. It made going off vicodin so much easier.

If any of you want more information there's a great forum for information here.

On another note, sadly, I think there are some states where it's illegal or they are trying to make it illegal...So you may want to find out the laws in your state, too.

If you have any questions let me know!

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Chronic Pain: A Newbie and Her Fight To Live

Mar. 23rd, 2008 | 08:31 pm
posted by: submissivecunt in untreated_pain

New to Live Journal, I am a avid blog a holic whose life has been taken away and put in the grips of chronic pain. I am seeking friends, I am seeking anyone, anyone who will listen, anyone who understands and knows what I face daily, just someone who will accept me. I’m a 25 year old female who in 2004 was diagnosed with “colitis” an illness I had no prior knowledge of or even heard the name prior to this. Since 2004 it has worsened and to keep this post short I will try to explain the best I can, I sit here in tears because I know how much this illness has taken away from me.


I knew something was wrong in early 2004, like usual I ignored the signs of my unhealthy body. In Feb. 2004 my mother was diagnosed with colon cancer (she recovered and is now in remission). I ignored the pain I was in and ignored the bathroom issues because my mothers well being was the only thing I could think of, days without sleep, trying to juggle at the same time. By July 2004 I knew that I needed to go to in and get it checked out, I was in so much pain and went so many days without eating (because I no longer could) I passed out and was sent to the ER. Three trips later to the ER with the same issues and being admitted (the last time) they finally addressed my problems as being “colitis”. I went on the routine of diet and meds, tests, and colonoscopy’s to find the ulcers were 18+ inches up my colon and covered the rectum, the doctors were baffled they stated saying they had never seen a case as bad as mine.  On the meds for nearly 2 years (up to 2006) I just kept getting worse, I was unresponsive to all the medications and combinations of them. Around this time I was having grave pain as well as the issues that stems from colitis, I was going to the ER once to twice per week and most of the time I was very ill, they always pumped me full of morphine and sent me home with a bandaid treatment because they couldn’t address my issues, not knowing why I wasn’t responding to the medications. When I was removed late 06 from all the meds for the colitis the ER trips sort of stopped, the steroids and other meds were causing worse stain on my body. I sit now before you riddled with the effects of chronic pain and depression. The ulcers ate through all the muscle tissues in my colon causing them to collapse which in return caused a rectal prolapsed (the rectum coming out of the body). Not just at the times I go to the bathroom (and with colitis it is often I go upwards to 50 times per day on flared ups) it happens when I walk, it happens so much and causes grave pain, pain no one could imagine it doesn’t go away, pain I wouldn’t want anyone to come close to imagining. Since 04 I have been through 18 doctors, surgeons, and specialists all of which look at me and basically say “what do you want us to do”. They before talked of surgeries, reconstruction and colostomy now in 2008 they say surgery is not an option for me anymore my body is way to unhealthy to come through a major surgery. My immune system due to the colitis is lowered, I get staph infections, and other issues which lead them to basically say if we do this you will have a tripled risk of death. I don’t want to die, but I don’t want to live in this pain, each month the illness and pain takes away so much I try not to let it but I have lost friends, I have lost my sense of who I really am, I had to quit my job, I had to quit college my medical school dreams all never happened as I had to turn my scholarship down knowing I can’t do it. I used to have a great young life, I was a party girl with friends I would go out shopping, I would hang out with my family I was active. Now I don’t even leave my house my life now is colitis, chronic pain, depression, fear, and panic attacks.


I am seeking friends, friends who know what I am going through. Like I said I’m new to groups on LJ and LJ itself I blog as an escape, my friend told me to sign up for the LJ community. I would just like to meet those who know how is is to suffer from colitis and illnesses like chronic pain and be accepted for my illness. Please feel free to add me, take a look at my blogs, email back and forth, I am extending a hand to anyone who wants to add me as a friend and communicate because in all reality I need to meet others who understand.



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Sep. 18th, 2007 | 02:11 am
posted by: bloodred1889 in untreated_pain

hello everbody.
my names jade im 20 years old.
im a photography student.

i have had chronic back pain for 6 years now, which was caused by being kicked in the ribs by a gang when i was 14.
now 6 years on the pain is in my spine, lower back, legs, neck and can even goes to my arms and hands on a bad day.
only now am i getting an mri scan to see if there is anything they can see and do.

i have had a long battle with the docters about opiates and narcotics due to the fact they swear everyone can get addicted.
as im in the uk its harder to get painkillers such as vicodin ect.
i am currently on a opiate called co-dydramol and co-proxamol.
these dont work if atall and im currently trying to get my doctor to let me have somthing stronger, as im so young she is concerned with how i might cope with painkillers.

i totally understand what people go through, the doctors dont listen, they contradict themselfs, they are scared to issue certain if any pain meds.
and if your young like me they belittle you.

i joined this comunity so i can make friends who might understand me.
feel free to add me to friends i tend to ramble on about photography, or my back hehe


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Sep. 17th, 2007 | 03:55 am
posted by: plentyonothin in untreated_pain

Hello, I've just joined. Here is my introductory rant.

I've had chronic foot pain for about 6 years which over time has got worse and spread to my legs and back, and bizarre feet my entire life (weak ankles, used to bruise for no reason, wider than the wealth gap). Efforts have been made to find out why I'm in pain and to treat it, but with no success. I tried regular Ibuprofen for a month but it didn't stop the pain and I started to have pain in my oesophagus so stopped due to ulcer worries. I went to a podiatrist and they made me special insoles and told me to do special stretches after diagnosing me with plantar fasciitis, but that didn't stop the pain. I went to a remedial masseur and he seemed to have some idea of what was wrong, but the doctor didn't understand when I tried to explain what he'd said, and I can't afford to regularly see a masseur.

The pain makes it very unpleasant to exercise so I have gained an awful lot of weight, and I'm at the stage where I really have to lose weight by hook or by crook, and I can no longer wait to find a solution to the pain. What I find particularly soul-destroying is trying to get advice on how to lose weight with chronic pain, and the result always seems to be "Exercise!" when I'm already pushing myself through hell to do what I've been doing and am still gaining weight, or "Eat less!" when I'm eating healthier than most of the diet plans I've seen. Are the only options actually either a) starve yourself or b) keep pushing until you pass out from the pain? There must be another way. Right? I'm tired of doctors acting like it's easy, not to mention telling me there's nothing more they can do and I just have to live with it. No, damn it, I do not, and will not.

Anyway. Rant over. I guess I'm just not sure what to do anymore and I want someone to suggest something I haven't already thought of, because at the moment the possibilities seem pretty grim.

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